Molly has a condition that is called megacystis microcolon intestinal hypoperistalsis syndrome. It is incurable and her only real hope of survival is to have a multivisceral transplant. That includes her stomach, pancreas, liver, and small bowel. In a nutshell she doesn't have working intestines, or a working bladder. Her liver and pancreas will continue to worsen until they can be replaced. She will have to be catheterized her entire life, because there is no way to replace the bladder and eventually she'll need a kidney transplant. The doctors told us at our 20 week checkup that she wouldn't have much chance of making it full term much less at making it out of the hospital once she was born. I'm glad that doctors don't know everything, because she has surprised many people along the way. The fact that she was born and is doing well is a miracle in itself. She is still in the hospital, but they are planning on sending her home very soon. She's not ready to give up and neither are we!
3 comments:
God bless you, Hovis Family! Thank you for trusting the Lord.
I prayed for you all tonight.
I hope we have an opportunity to get to know one another better sometime soon.
Oh Haley! What a brave lady you are!! Your faith and trust in the Lord is a true testament to me. You ALL are in my thoughts and prayers.
hi my name i dsale and i am from scotland my wee girl has same condition and is nearly nine months she was in hospital for first five.she has vastly improved and the fats ahe is on smof they are called are doing wonders for her, there is hope without a transplant just keep praying thats what i did when times were tough i know exactly what u have been thru, my wee girl looks normal and goes to child groups like everyone else and is off her tpn and fats for 7hrs a day u forget that something is wrong with her sometimes but then it hits u , there is hope believe me
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