What Molly's nurses had to say...

Nurses from Children’s Hospital NICU

Jen Waffle – Oh, sweet snuggly Molly…this child touched my heart – through her trusting gaze, her hint of a smile, her quietness when being held late at night in my arms while listening to her Jack Johnson CD. Or when I would unhook her fro her monitor and take her out to my work station, so I could hold her, smell the top of her sweet baby head, and talk to her, until she drifted off to sleep right in the middle of one of our late night conversations. She was a beautiful, sweet, wise soul. She is also one of those babies who will forever be in my heart. I am so thankful and feel so blessed that I got to meet her on her journey.

Sara Boyd – I remember Molly was usually very curious about anyone being in her room. She just wouldn’t settle into her nap is she knew anyone was still there. Now, if you were holding her, she would fall asleep in your arms. So, when Haley was in the room, Molly would be awake, alert and searching for her mom’s eyes. Now, if one of us nurses were there it was a different type of awareness – she knew us, knew we were there, but she wasn’t as engaged – she just shined when Haley was in the room.

Carolyn Penrose – When I think of Molly, I think of how she is a true reflection of the love of her mother, father and brother. Despite Molly’s struggles medically, it was evident that she knew how much her family adored her and that they treasured every moment with her and the miracle of her life and of her time here on earth. I feel truly blessed that I had the opportunity to care for Molly and her family and I admire their strength and courage. Haley was truly an amazing mother and was always eager to learn everything possible so she could care for Molly. Two weeks ago, I cared for Molly and she smiled at me for the first time. I just watched her in amazement and talked to her and cuddled her and I was awestruck, not because of her smile, but because I had one of those moments where you realized how incredibly lucky we all are for the life we have and the loved ones in our life and I stared at her in amazement wondering how a child who has been through so much in her short lifetime can find a reason to smile and I know that the reason is because she was surrounded by love. God touches our lives with people sometimes for only a moment and sometimes for a lifetime but we have to treasure each moment we have with those we love and Molly’s family truly treasured each moment with Molly. Her mother cared for every need and want and loved her with all her soul, her father adored her and treasured precious moments with his baby girl and little Owen was always there to play with Molly and kiss her in the swing and make us laugh even in a difficult situation. I will always pray for you and your family and that God grant you peace that even though her life was short, you made the difference in Molly’s life and made her days here on earth beautiful and full of love.

Gina Gavin – My name for her was “sweet cheeks”. To me, with those beautiful cheeks, she was like a cherub here on earth. And al she wanted while she was here was to feel the hugs of those around her. She fed off of those hugs and cuddles. That was her sustenance. She probably stored them in her cheeks to take them up to heaven with her.

Linda Wood – While I only cared for Molly the weekend that she left for Omaha, what I will remember was that she was a touch little cookie with a lot of spunk.

Heather Fitzgerald – I will always remember Molly as one of my M&M’s. Now that only one M is at work, there is a void in my night. I loved those cheeks from the first moment I saw her. She was such an enthusiast about her pacifier. I think that is what continued to build up those cheeks…her muscles got bigger sucking. Molly’s gaze just put everything right with the world. She was such a great communicator. All she wanted was to stay awake when I was trying to rock her to sleep. We would sit, read, talk…night shift was a real treat because of Molly.

Karen St. Louis - About Little Miss Molly…it was always clear how much Molly was loved, her room was full of signs of love, hope and celebration – purple butterflies and music. One night, I went into Molly’s room to check on her. Haley and Owen were in there. Molly was asleep in her swing. Little Owen held his arm up in a “halt” gesture and gave me a loud “NO!” in the way only a 2 year old can. After several more “No’s”, and my attempts to persuade him that I was an OK person he hauled off and punched me in the leg. He was protecting his baby sister. Isn’t that what every little girl wants, a big brother to defend her and punch out anyone who might be coming around to pick on his little sister? Owen and I soon shook hands, and made up and became friends. He proceeded to kiss his baby sister on the head saying “My”. His way of say Molly’s name told me at once that not only was she Molly, she was HIS Molly. I have met few mothers who are able to fight and advocate for theirs baby’s the way Haley fought for Molly. The strength and love this family shares is amazing.

Jane Deacon – I always felt that Molly was ok with her fate. She seemed to be patiently waiting for the rest of us to catch up. She was patient and enjoyed the love of everyone that came into her life, be it family, friends or those of us blessed at University, Children’s and Omaha. Molly seemed not to want her family to suffer or linger in sadness.

Genette – There’s an African tradition from my husband’s home country of Senegal, West Africa. A child is not officially named until three months of age at a very important baby naming ceremony. The reason for this is that the people in this part of the world believe that the baby has to show their personality first, and then an appropriate name will be given. If we held this same custom for Molly, I think her name would have been something that embraced the character of a dedicated, fierce, female soldier! The baby naming ceremony is very important. It lasts all day with music, feasts, dancing, very raucous and joyful! So, Molly, today for me your name is Molly, Xare-Kat-Yi, little soldier. Love always, Genette

Michelle Kaufman – There was a calm and a peace about Molly that seemed to surpass all understanding. For as broken as her body was, Molly was as whole as I could ever hope to be. One early Sunday morning I was caring for Molly and…I was feeling frustrated. In the middle of my grump she had been kicking and moving around. Out of nowhere her hand lay on my arm, and as I paused I noticed that she had stopped kicking. When I looked up, Molly had a wise smirk on her face. I laughed out loud thinking to myself, did she just tell me to calm down? Molly, Haley, Brad and Owen and the entire family have been a blessing to my life and they will hold a special place in my heart. This is a place in my heart where God can illuminate suffering into treasured experiences and magical moments. Growing up I was taught that there is one reason that God puts us on this earth…and that is to love. Molly loved us well and she was loved fully and whole.

Nurse from University NICU –

Hi, my name is Angie and this is Tracy and we are nurses that took care of Molly. I first took care of Molly when she was just a couple days old. From the first time I took care of her, I pretty much fell in love with this little girl. She had the most mellow, easy going personality, and her cheeks were pretty cute too! Molly had a lot going on in the first few days and she hardly seemed to notice. The only thing she wanted was to be held. When you would hold her, she would just melt into your arms. Molly and I had many adventures during our time together. We often would go to radiology, which required a trip down to the basement. Most babies hate being taken on adventures. Not Molly, she loved them! They have this warmer on the radiology table called the bear hugger and let me tell you, as long as Molly was on the bear hugger, she couldn’t care less what else was going on! There were many times I would come into work and Molly was being rocked by the nurses while her own CD’s were playing in the background. Or, I would find her on rounds with the doctors, or charting with the nurses. All in all, she was one very special girl (oh, did I mention the cheeks?). Haley and Brad were incredible through this whole process. Working in the NICU, we come across families that are faced with difficult situations. I have never seen a family deal with a difficult situation in the way that Haley and Brad did. Sitting and listening to Haley explain what she was going through and how she was processing all the information was the most unbelievable experience. I feel very lucky that I was able to take care of Molly for the 6 wks she was with us in the NICU, and I am very happy to have met such a wonderful family. I know that we all will miss Molly very much. I have a poem to end on and hopefully I can get through it…

The poem is called “Letter to Mom” (even though it’s a letter to both Mom and Dad. It’s by Joy Curnutt.
Mom, please don’t feel guilty
It was just my time to go.
I see you are still feeling sad
And the tears just seem to flow.
We all come to earth for our lifetime,
And for some, it’s not so many years.
I don’t want you to keep crying
You are shedding so many tears.

I haven’t really left you
Even though it may seem so.
I have just gone to my heavenly home,
And I’m closer then you know.

Just believe that when you say my name,
I’m right next to you.
I know you long to see me,
But there’s nothing I can do.

But I’m still sending you messages
And hope you understand.
That when out time comes to “cross over”,
I’ll be there to take your hand.

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